I spent much of this week in the pediatric intensive care unit with my sweet cousin, Anne and her amazing parents.  For those of you who don't know, Anne is 17 years old and has Down's Syndrome. She was diagnosed with biphenotypic acute leukemia on February 1st of this year. The past 8 months have been full of chemo, infections, blood and platelet transfusions. One complication after another. We almost lost her around Easter of this year. It was heartbreaking. 

Through all of this, Anne, amazing Anne has remained brave, even when she didn't really understand why this was happening to her. She just knows she is really sick and has to go to the hospital a lot. After getting a shot from her nurse, Anne would cry sometimes and then rub the arm of her nurse, as if to console her. When her doctor came in to assess her when she was at her sickest, Anne still found the strength to raise her arms out for  a hug - causing a typically stoic attending physician to have tears in her eyes. 

My mom and I were there the day she was diagnosed. What an awful day. I remember my aunt, whom I love dearly, twice collapsing in my arms with grief. Why was this happening to this innocent girl with a soul as pure as any I will ever meet?? "Stay strong, Katie." I told myself over and over. They need you now. 

Even during my darkest days, I would somehow summon the strength to get to that hospital. There have been so many times I have explained all that is happening to her to my aunt and uncle, after all, oncology is my specialty as a nurse. I just want to make this a little easier for them - the most loving parents Anne could ever have. I want to put a smile on my aunt's face when Anne is in surgery, make them laugh, ease their burden, hug them as hard as I can and tell them she is going to be okay. 

That girl. God, that girl is amazing. Helping take care of Anne has helped me. That beautiful soul has made me better just by being around her. Seeing her smile when I walk into the room makes me think I can put the anorexia away for the day. I do better. She is healing me. This sick little girl is healing me more than any therapist ever could. That face, her face makes me smile, makes me warm inside, makes me cry, makes me shake with fear at the thought of ever losing her. 

Anne was just in the PICU because my aunt, with the eyes of an eagle, noticed swelling in her left arm. Turns out, she had a HUGE clot along her central line, completely occluding her subclavian vein. This vein drains directly into her heart. It was at least four inches long. Her surgeon, a handsome, young Greek man with a name I can't remember (I call him Dr. HOTsisopolis - sounds Greek, right. Wonder if he's married...I digress) carefully explained the procedure she would need to safely remove this clot. 

This was a huge challenge. To safely remove this clot, they would have to thin her blood. She is already prone to bleeding because of how the chemotherapy affects her blood. Thus, the three day stay in the PICU.  Anne went home yesterday, only to return this Tuesday for more surgery to remove the central line. (I hope Dr. Hotsisopolis is there...sigh...).

Anne is going to be singing with her school choir in two weeks. When she was getting ready to be discharged, she sang a song for all of us. She was off key, off rhythm but it may have been one of the most beautiful things I have ever heard. Three nurses, my aunt and uncle and I a listened and applauded when she finished. She smiled and ducked her head, being a bit shy. My heart broke into little pieces. She is a wonder. I love that girl. Please, please don't take her away from us. 

Just because I smile and laugh at the hospital, doesn't mean don't come home and cry. And pray that we get to keep her. 

Sweet Anne. 

For Anne 

Views: 303

Comment by Christine Geery on September 30, 2012 at 2:43pm

I am writing this comment with tears streaming down my face.  I am sending love to Annie and her family and of course you. May you all find the strength to go on. My daughter is challenged and rarely in a good mood. People with Downs are the most loving people on the planet. But you already knew that. Bless Annie and bless you. BTW I hope Dr. Hot is there too.

Comment by Katie Badger on September 30, 2012 at 8:56pm

Thank you so much, Christine. Bless you and your family

Comment by Scylla the Rock on September 30, 2012 at 9:17pm

Very hard.  Prayers for one so young.  Tears now.

Comment by Katie Badger on September 30, 2012 at 11:11pm
Thank you Scylla. I know you can understand this on some level because of your own journey. Many blessings
Comment by lemonpulp on October 1, 2012 at 7:32pm

crying here. sending healing thoughts to anne, you, and the family. and do find out if dr. hot is single ;)

Comment by Katie Badger on October 1, 2012 at 11:15pm
Thank you and I will!!
Comment by anna1liese on October 14, 2012 at 3:03pm

So late here ... but thinking of you and of your Anne ... of tears and smile ... and song ...

Comment by sarah brennan on October 14, 2012 at 5:06pm

oncology nurses rock. (I volunteer at the chemo unit of a local hospital, so I get to watch them every week.) therefore, you rock, even more than you already do. your cousin sounds like such a dear. I send you you and your family blessings...

Comment by Katie Badger on October 15, 2012 at 8:44am

Thank you so much! update - Anne has been in intensive care for a week and a half with septic shock. She is VERY sick and her doctors are not sure they can pull her through this. I have been there every day and am hoping for a miracle. Good thoughts, prayers, whatever you believe in would be greatly appreciated. We don't want to lose this precious angel. 

Comment by Christine Geery on October 15, 2012 at 9:12am

Sending as much love and light as I can. Faith can move mountains.  My first husband was sent home and told he had only 2 weeks left. He lived for another 2 years. You just never know. He believed it was the power of prayer.

Comment

You need to be a member of Our Salon to add comments!

Join Our Salon

NEW BLOG POSTS

Greeting of the Day

Posted by Ron Powell on June 16, 2019 at 10:08am 0 Comments

Go Big or Go Home

Posted by Ron Powell on June 16, 2019 at 9:30am 1 Comment

...disappearing into the ether

Posted by Steel Breeze on June 16, 2019 at 8:15am 5 Comments

Waiting And Seeing

Posted by Robert B. James on June 16, 2019 at 7:29am 1 Comment

Leaving the Purple House

Posted by J.P. Hart on June 15, 2019 at 9:30pm 2 Comments

As Luck Would Have It

Posted by Robert B. James on June 15, 2019 at 3:04pm 1 Comment

PreOP Poem

Posted by J.P. Hart on June 14, 2019 at 1:33pm 2 Comments

Fear of Being Sentimental

Posted by Doc Vega on June 14, 2019 at 10:42am 0 Comments

© 2019   Created by lorianne.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service